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I'm new

Okay, I've been typing my little heart out since I found this whole lj thing but I never introduced myself. How rude of me. My name is Nichole and my dx is usually very mild Lupus. I worked for the Colorado State parks when I was in high school. Lots of sun, funny rash, very tired and a misdiagnoses of acne. You guys know the drill. The docs in Colorado went crazy over all of my bizarre blood work and actually asked me to donate some for study at the University of Colorado. They better name the cure after me! Anyway, I was put on pred. at 17 and had crazy side effects that I never told anyone about because they always treated me like a hypochondriac. I went into remission and off my meds. Four years later during a painful divorce I had a serious flare that involved my kidneys. More pred because plaquenil makes me very sick. I flared for about 4 years but went into remission again. I'm having a flare right now but my doc. hasn't seen it on paper yet. I'm hoping for meds soon because I'm sooooo tired. I work full time, am a single parent and I go to school part time.

I want to thank everyone who helped prepare me for my mri yesterday. It was cake probably because I knew what to expect.

Yesterday my light bulb went on. Three months ago I was put on high doses of BC pills for medical reasons. My headaches turned into an every day thing and my hair started falling out. In the last few weeks my joints have been hurting, and as I mentioned, I am really tired. Any thoughts on this?


( 2 comments — Leave a comment )
Sep. 9th, 2006 08:50 pm (UTC)
Hang in there, ok? Bug me on my lj area if you have questions/worries/whatever - I don't have the answer all the time but I'll happily look stuff up if I don't know the answer:)
Sep. 11th, 2006 02:58 pm (UTC)
Thanks!!! I feel much better knowing there are others out there that understand and are supportive!
( 2 comments — Leave a comment )

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